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Help Bring Rett Syndrome Treatments to Canadian Girls
Cure Rett Canada Inc., a Canadian not-for-profit organization, is raising funds to support Rett syndrome research in the United States, with an urgent and deeply personal goal: helping promising treatments reach Lucia and Adeline—and, ultimately, other Canadian girls living with Rett syndrome.
Lucia and Adeline are two young Canadian girls living with Rett syndrome, a rare and devastating neurological disorder that primarily affects girls. Today, there is no cure, and currently available treatments are only symptomatic and do not correct the underlying genetic cause of Rett syndrome.
For the first time, research is giving families real hope. Scientists are developing promising new approaches that aim to address the underlying cause of Rett syndrome, rather than only managing its symptoms.
Despite the urgency facing families like ours, there is currently no government support nor a clear or timely pathway for Canadian children such as Lucia and Adeline to access these emerging treatments. We cannot afford to simply wait and hope that these advances eventually reach Canada. That is why we have decided to act ourselves.
Why We Are Fundraising
Through Cure Rett Canada Inc., we are working to support Rett syndrome research in the United States that could help accelerate the development of new treatments and expand opportunities for Canadian children to benefit from this progress.
Our immediate hope is deeply personal: to help bring treatment within reach for Lucia and Adeline while they are still young and during a critical period of development.
Our vision goes beyond these two little girls. By supporting research today, we hope to help create a pathway that may one day benefit other Canadian girls with Rett syndrome, so that Canadian children have an opportunity to benefit from potentially life-changing advances, regardless of where they live.
Two Girls Are at the Heart of This Mission
Lucia and Adeline are why this effort is so urgent. Their families are watching remarkable scientific progress unfold while knowing that time matters. Childhood cannot be put on hold while treatments move through years of research, development and regulatory processes. We want to do everything we can to help move that research forward.
Your Business Can Help Move Research Forward
We are asking Canadian businesses and community partners to stand with Lucia, Adeline and the Rett syndrome community.
Funds raised through this campaign will directly support Rett syndrome research in the United States, with priority given to promising research and therapeutic programs that have the potential to accelerate progress toward effective treatments and future access for Canadian children.