Rylee's road to fund a life changing Gene Therapy. 

 

Rylee was born with an ultra rare Nuerodevelopmental Genetic Disorder FBXO11. It affects how Rylee's brain can process and direct things and has caused her significant issues in her short life so far. Rylee works very hard to try and progress but is stil on oxygne and reliant one a feeding tube at 10 months old.